“If you want to be incrementally better: be competitive. If you want to be exponentially better: be cooperative.” Unknown.
In a world with people living with Parkinson’s Disease, the only real and true way of getting things accomplished is through cooperation.
Cooperation from the patient in getting involved in clinical trials. Involvement in the clinical trial process, to the extent that we all can, will yield quicker results.
Cooperation within the patient community of advocates, doing what you can, in partnership with other advocates to strengthen our collective voice. I’ve termed it the “exponential power of advocacy”.
Cooperation among researchers to speed up new treatments, and eventually, a cure. What is being shared? What is being done with the information? How is the patient voice a part of the research process? To what extent is the patient/advocate engaged in the research process? If not, why not?
Cooperation among organizations that award research grants to have a focus on what is important to the person living with the disease. I often speak of quality vs. quantity. Is the money being used wisely? Is it research for the sake of research, and not with intentions of improving the quality of life of people living with PD?
Cooperation among advocacy groups to realize that the person living with the disease is their priority. All organizations do much for the patient community, but is there total and true cooperation to advance the cause of this same community? I think we have far to go in this instance.
Competition is a good thing, but when it comes to taking a united stand against a vicious disease that keeps on taking, cooperation is indeed honorable and the only thing that will matter in the eyes of those whom organizations seek to serve.