Partners in Parkinson’s
A health initiative created to fill knowledge gaps by providing educational tools and resources to optimize care at every stage of Parkinson’s Disease.
A bold statement from the partnership between the Michael J. Fox Foundation for Parkinson’s Research and Abbvie that encompasses what many in the Parkinson’s community have been seeking to have available. It’s here and it’s ready for use, regardless of where you live in the country. I don’t have a doubt that this initiative will be a success because, above all else, the patient is at the core of the program, helping them to realize what is available resource-wise in our communities to make their quality of life the best that it can be.
The kickoff event was held Sunday, May 18th, in New York City. It was the first of 11 events to take place in cities this year, with 15 more slated for 2015. Attendance is not necessary to take advantage of the resources available on the Partners in Parkinson’s website, but it is well worth the time to participate in a scheduled event in your area : http://www.partnersinparkinsons.org
The importance of this initiative cannot be stressed enough because the needs of the patient community are what will drive the program and trained patient advocates will work at fulfilling those needs in the community. It starts there and includes a Movement Disorder Specialist Finder in your area, educational resources online, and an opportunity to sign up to be contacted directly by a trained Parkinson’s Advocate.
This program is on par with the Fox Trial Finder in importance and need to create change to get us to the next level of patient engagement in living productive lives, but also in realizing the potential that we have as patients, to influence Parkinson’s research. The “knowledge is power” adage is so true with this program.
The commitment to make this program work is obvious with the resources avaialable. It is up to us to spread the word about its existence, reaching out further and deeper into our Parkinson’s communities throughout the country to let those living with and caring for those with Parkinson’s Disease know that they are not alone, and help is available now.